2020 CFF共识指南:囊性纤维化患者的姑息治疗模式
2020年9月,囊性纤维化基金会(CFF)发布了囊性纤维化患者的姑息治疗模式指南,全世界范围内,囊性纤维化(CF)影响了超70000人及其家庭,虽然CF患者的预后正在止血改善,但其仍无法治愈。本文主要针对囊性纤维化患者的姑息治疗模式的最佳实践提供共识建议。
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The Cystic Fibrosis Foundation (CFF) is a non-profit organization in the United States established to provide the means to cure and control cystic fibrosis (CF). The Foundation provides information about cystic fibrosis and finances CF research that aims to improve the quality of life for people with the disease. The Foundation also engages in legislative lobbying for cystic fibrosis